February 2022

A remarkably simple and helpful piece of research

'A remarkably simple and helpful piece of research' Chris Mullin, Chief Economist, UK Department of Health and Social Care This quote was among a number of twitter postings that commented on the publication of the paper reporting work undertaken by Idaira Rodriguez Santana and collaborators from the Centre from Health Economics (CHE) at University of York.
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November 2021

HCD Economics celebrates 70th ‘news’ article

When HCD Economics launched its new website, following an intensive corporate strategic review in 2018, the Director’s committed to a news section that would be informative and of value to website visitors. In November, the 70th article was published, joining its predecessors in building up a solid knowledge base reflecting the ethos and research focus of HCD Economics.
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October 2021

New CHESS study seeks research partners– CHESS will, for the first time, inform enhanced longitudinal understanding of the burden of illness for patients with haemophilia

Results from the first CHESS study were published in July 2017 (O’Hara et al. Orphanet Journal of Rare Diseases (2017) 12:106). The study investigated the burden of illness (BOI) for haemophilia patients and has been instrumental as a source of health economic evidence in advocating for access for these patients to new genetic advances in treatment.
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October 2021

‘Socioeconomic evidence – a human aspect that science alone lacks’

‘Socioeconomic evidence – a human aspect that science alone lacks’ Tara Kearns (Vice President and Co-Founder, PFIC* Advocacy and Resource Network) ‘research is absolutely where my passion lies, as I know this will create the most change!’ Melanie Karakaidos (Director of Global Advocacy and Outreach, PFIC* Advocacy and Resource Network)
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September 2021

Preference Research – new Haemophilia study published

As a timely follow up to our June 2021 news article by George Morgan, ‘Preference research – the evidence based approach to quantifying the patient voice’, HCD Economics is able to report publication of a new preference research study, undertaken by George and co-authors, under the lead authorship of Michelle Witkop, Head of Research at the United States National Hemophilia Foundation. The study is published in Haemophilia, the official journal of the World Federation of Hemophilia.
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August 2021

Haemophilia in Latin America – HCD completes and expands burden of illness research

CHESS LATAM is an expanding research programme investigating the burden of illness (BOI) of haemophilia patients in Latin America. Building on the contribution of the CHESS (THE COST OF HAEMOPHILIA IN EUROPE & US: A SOCIOECONOMIC SURVEY) real world evidence investigation into BOI for haemophilia patients in Europe and United States, the CHESS LATAM research initiative employs the highly respected HCD Economics BOI methodology to uncover understanding of the BOI for haemophilia patients across the Latin American continent. This replication of an EU/US initiative is similar to the Latin American application of the Principles of Haemophilia Care for Europe (PHCE) in other regions of the world, undertaken in Latin America and published by Apsara Boadas in 2018.
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