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Check out what is happening at HCD Economics

May 2022

360,000 compelling reasons to invest in patient empowered Fabry Disease research

Although around 4-5000 people are known to be diagnosed with Fabry Disease in the United States (Mol Genet Metab 2008, 93:112-128), the US National Fabry Foundation proposes that just under 30,000 US citizens could be living, unknowingly, with classic and non-classic Fabry disease (
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April 2022

HCD Economics continues to expand socio-economic understanding of Movement Disorders.

Movement disorders are commonly neurological, involving both voluntary and involuntary abnormal, reduced or slowed movement. Ataxia affects the cerebellum, the brain’s coordination centre, causing uncoordinated, clumsy balance and limb movements as well as impaired speech. Dystonia involves sustained involuntary muscle contractions with twisting, repetitive movements. Myoclonus muscle jerks can be lightning-quick, effecting either a single muscle or a whole group of muscles. Chorea is characterized by repetitive, brief, irregular rapid, involuntary movements commonly of the face, mouth, trunk and limbs. HCD Economics has already conducted a large Burden of Illness Study of Huntington’s Chorea, one of the most well know genetic diseases.
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March 2022

New study will examine the impact on paediatric haemophilia standard of care of the 2018 introduction of novel genetic therapies

In 2017, a study was undertaken to understand the burden of illness for paediatric haemophilia patients, treated with the standard of care available at the time. 785 patients were included in the study, which was conducted across Germany, France, Italy, Spain and the United Kingdom. The study, identified by the acronym CHESS PAEDS raised awareness of the prevalence of problem joints and associated quality of life impairment for these patients.
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About us

HCD was created out of an alliance with University of Chester, charities and health service sectors in reponse to the ever-growing demand for economic analysis within healthcare and specifically the need for health economics and business intelligence within the public and third sectors.

Through these partnerships, HCD provides a unique insight and perspective, focusing our analyses on what matters to patients as well as decision-makers, all undertaken with academic rigour, independence and credibility.

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Our Process

We have created core partnerships with University of Chester and leading patient charities that underpin our approach.

Higher education

Academia has a leading role to play in providing an independent, credible evidence-base as well as evaluating current and new ways of delivering healthcare.


Our partnerships with patient charities ensure that any analyses we undertake reflect the day-to-day realities of living with a particular condition.


We apply primary or secondary real world data sources depending on research needs and questions. From ethically reviewed burden of illness studies and bespoke service primary data, to secondary sourced disease registries and episode statistics.

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